Goodnight?

Eh not really. Recently Andy’s night time restlessness has returned with a vengeance. He has had real trouble settling over the last few weeks and everyone in the house has been affected. Now Jen and I are well used to surviving on very little sleep but it has been particularly difficult on David who shares a room with his brother. Helen has been affected less but still significantly. She has been later getting to sleep and was extremely distressed one night to be woken by her irate brother who was having a tantrum as he had lost his current object of interest- a wooden spoon of all things. For David he has had to try and sleep through constant switching on and off of the light, Postman Pat dvd on a loop and random sounds from an IPad. All this is interspersed with shouts and prancing round the room by his younger brother. Now this was difficult through the holidays but is frankly not acceptable when David has school next morning. Sunday evening saw David agreeing reluctantly to sleep down stairs on a settee bed in our lounge. Like many autism siblings he has now accepted this compromise and it is starting to become another part of our routine. The first night I sat with David for a while before he went to sleep while Jen was upstairs with Andy. Although not mentioned I think we were both surprised at the quietness and peacefulness that presumably most of us experience prior to going to sleep. As always we have adapted and found a temporary way at least to help us get over this latest problem. For David of course it is not just the sleep situation but also the need for some private space for him and his belongings.This is a need that will increase in years to come and we are hoping to work towards a more permanent solution this year by making alterations to our home.
Andy has struggled recently with intermittent sluggishness and hyperactivity and like many of us will be happier in the brighter days of spring and summer I feel.
On a personal note I had a disappointment this week when I was unsuccessful in an application for a job as an autism advisor. It’s a position I felt I could have filled but I wish whoever was successful well. It’s undoubtedly a role that requires experience and honesty. Those living with autism deserve nothing less.
I.B.A.

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