As a busy carer and autism parent I feel rather disenfranchised from the democratic process much of the time. I do what I can to get the voice of disability heard but it can be very frustrating at times and many simply ignore us. For this reason I have decided to make a direct approach to our prospective U.K. parliamentary candidates.
My son Andy is 8 years old and has classic autism. He is non verbal and has a number of co-morbid conditions. He requires round the clock care and support.
With the general election campaign in full flow I have been keeping as much of an eye on proceedings as Andy allows. It certainly is a cut- throat business often characterised with too much heat and not enough light. Along with many other carers I have been trying to monitor events in terms of vulnerable groups and their needs. To say it has been disappointing thus far is something of an understatement. It is so very hard to even get a chance to put forward concerns or ask questions. Then there is the whole question of trust, doublespeak and semantics. My son does not have a voice. I am his voice but much as I try to advocate for him and others like him I am severely limited in time and energy due to providing his care 24 hours a day.
Andy will be dependent on the state for services for all of his life. This general election and the direction we go in is of crucial importance to his future. To this end I would like to invite each perspective Westminster candidate for Argyll to come and meet my son at home (we struggle to get him to go to unfamiliar places due to his A.S.D. )
I would like you to meet my precious boy and discuss his needs and the support needs of carers and siblings and to find out how you would contribute to these issues. You may think you are busy but we are never off duty.
I would be happy to make a future report on how this request progresses.