Parents’ love for their children evoke the most powerful of emotions both positive and negative. Children with special needs can engender even stronger emotions I think.
While I certainly do love all my children equally my instincts towards Andy’s needs are heightened simply because that is the way things have to be most of the time at least. To use a football analogy ” I kick every ball with him.” I strongly identify with every one of his experiences – good or bad. I worry about how he experiences every aspect of his life and I strive with all my heart and mind to understand and facilitate his wellbeing.
Recently we have experienced extremes – great understanding and support and sadly treatment that falls beneath an acceptable standard.
Positives have been the beautiful responses recently from staff at our favourite leisure centre at Hunter’s Quay, (each and everyone of you lovely people in the cafe, on reception and at the pool) Coast Coffee where Andy loves to get a banana milkshake – Jamie, Martin and Jessica thank you- and the wonderful Christine at the local Co op -always helping out and so kind! And so many others that just make life that bit better, thank you all! In treating our precious son with such understanding and respect you encourage us in a journey that is never easy!
Where things have not been so good I will not name and shame here but hope that by pursuing an agenda of advocacy for Andy and promoting awareness and acceptance of A.S.D. improvements will happen. I hope also you will understand why we require to stand up for our vulnerable child, who is without a voice.
To those involved in enforcing an austerity agenda on people whose life is dominated by disability and who fail to recognise or attempt to understand the worth of those with disabilities and their carer’s ; to those who act in bad faith and without a democratic right to do so, who protect the powerful and ensure our society is rife with injustice and inequality ; I truly believe you are heartless, inhumane and evil.