As usual this week has put me under quite a lot of pressure. (loads actually) Andy has had a good week although his care still requires an almighty effort to balance it with all the other demands. My oldest son who has Tourette’s Syndrome has been experiencing an increase in verbal tics. As the new school term looms I have been redoubling my efforts to clarify what supports will be provided in order to offer him reassurance. Frustratingly, though predictably, the hierarchy at our local authority don’t appear to have much knowledge of this often misunderstood condition. My “attitude ” it appears is much more worthy of discussion than their service failures. It’s never easy challenging a large and insular organisation especially when the issue is the wellbeing of a loved one.
My second big stressor this week was about my own job. My employer has saw fit to downgrade my job and this will result in an 11% pay cut. This has caused us a lot of anxiety for the last couple of months wondering if we can get by on the reduced salary. Last week out of the blue I was given the opportunity to stay on my current salary but fill a position that would have threatened my work life balance and required more of me. I listened to those around me and discussed the issues at length. Yesterday a trip to climb the Cobbler with my oldest son convinced me that my duty of responsibility to my family would be best served by making sure I was there for them as much as possible. Given the choice this is more important than money at this time.
Unfortunately being a parent/ carer for a disabled person does not make you exempt from other types of life stress.