This is my first blog of 2017 and the intervening time since I last wrote probably represents my longest break since starting putting my feelings on paper. I have realised that I need to blog but have simply been busy.
I’ve been busy supporting my son and others at Inspired by Autism and I’ve become involved in representing the public view in the brave new world of Health and Social Care Partnerships ( HSCP). This is proving to be a minefield of new terminology, graphs and figures. I attended a very good Autism conference recently too and found lots of these ideas and terminology there also.
A major problem for me is the tendency to consider services and those who use them as commodities and consumers instead of HUMAN BEINGS getting the help and support that has to be the very foundation of a civilised society.
So we talk of hubs, business meetings, system enablers and pathways for high resource individuals! ( or HRI’s – snappy eh?)
When I listened to a presentation recently about HRI’s I realised that we had lost a PERSON who met this description a while back. He was one of the kindest, gentlest and most beautiful of people. He had worked very hard his whole life to raise and provide for his family. He had been struck by personal tragedy during his life and in his final years had endured multiple and complex ill health. It would be far too simplistic to pick out a reason for his ill health. He wasn’t an HRI, no he was my children’s grandfather. Those who promote this new shiny world of health and social care would do well to remember that.