Parallel Universes.

Sometimes it feels that there is little left to say about our lives with autism. Perhaps in previous times, I have been too prolific in my constant thinking, reflecting, blogging and sharing of experiences. Recently I’ve had little positive to say about autism policy in Scotland. I’ve grown tired of professionals putting a positive spin on the state of play. I very rarely experience autistic people or families agreeing with those who draw a salary from the ‘autism industry’. Politicians generally have the status of snake oil salesmen for people living with autism and not without good reason sadly.
For us, we remain as anxious as ever about the future for our precious boy. In recent times we have had an unwarranted social worker allocated with no experience of autism, being ignored or passed from pillar to post by our MSPs when support has been sought and discovered just how poor CAHM’s services continue to be. A petition with a powerful message from over 2000 people affected by Autism has been buried by our Scottish Parliament who clearly doesn’t want public opinion unless it can be used for political gain.
Like so many though we just keep on doing our best to keep challenging inequality and providing support, to keep trying to raise awareness, understanding and acceptance.
Inspired by Autism had a busy and productive drop in this week. It is so therapeutic to be among people who truly understand and who are willing to offer practical and emotional support to each other.
Engaging with ‘professionals ‘ and policymakers has so often produced such disillusionment and disappointment I feel inclined to keep my distance these days.
Until there are indications of change that reflects those living with autism’s needs and wishes we will remain in parallel universes.Dad, Andy & Bailey

I.B.A.

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