From a few years back !
Charity Bake off at SGE Esplanade Hotel raises £265 for Inspired by Autism!
Last Sunday we had a wonderful day at the Inspired by Autism Bake off event that took place at SGE Esplanade Hotel in Dunoon. Rebecca MacRaild, the hotel’s events manager and a parent at Inspired by Autism came up with the idea and used her talents and contacts to set up this fun charity event.
The day featured competition in several categories that produced an enthusiastic response from the areas gifted bakers with a truly fantastic array of scrumptious cakes. Professional bakers Yolanda and Helena needed all their experience to pick the winning entries in a competition of a very high standard. Many local crafters also attended paying a donation to have a table on the day. We had live music, an exciting raffle, delicious sandwiches and nibbles and a chance to sample those cakes after the judging !
For my part I was able to talk to people about autism and the support services we provide and to eat a fair amount of cake also!
It was a real family day and my precious boy made an appearance which was for me ‘the icing on the cake!’ Sorry!
Massive thanks to SGE Esplanade Hotel, Rebecca, our lovely judges, the crafters, Tim , David, Poppy and all our winners, musician, hotel staff and especially the bakers and all who attended and contributed to such a great event.
As a charity Inspired by Autism relies on donations to cover our overheads. Over the years people have been very supportive of the work we do and services we provide.
It is of great importance when providing advocacy that the organisation remains independent of potential funders agendas. At Inspired by Autism maximising the wellbeing of autistic people and families will always be the priority.
For us, we remain as anxious as ever about the future for our precious boy. In recent times we have had an unwarranted social worker allocated with no experience of autism, being ignored or passed from pillar to post by our MSPs when support has been sought and discovered just how poor CAHM’s services continue to be. A petition with a powerful message from over 2000 people affected by Autism has been buried by our Scottish Parliament who clearly doesn’t want public opinion unless it can be used for political gain.
Like so many though we just keep on doing our best to keep challenging inequality and providing support, to keep trying to raise awareness, understanding and acceptance.
Inspired by Autism had a busy and productive drop in this week. It is so therapeutic to be among people who truly understand and who are willing to offer practical and emotional support to each other.
Engaging with ‘professionals ‘ and policymakers has so often produced such disillusionment and disappointment I feel inclined to keep my distance these days.
Until there are indications of change that reflects those living with autism’s needs and wishes we will remain in parallel universes.
Andy’s sensory processing differences often cause difficulties for him but sometimes his reaction to sensory experiences produce great excitement and happiness. Here Andy is standing at our back door where he likes to feel the temperature difference on his bare arms and face. The snow that was falling in the light from our kitchen and his warm breath condensing in the cold air seemed to be adding to the moment for Andy causing him to stim, laugh and verbalise.
When Dylan sang about the murder of Hattie Carroll he ridiculed the idea that the ‘ladder of law has no top or no bottom ‘. It’s a powerful and moving song that challenges the inequities in the American justice system in the 1960’s.
Listening to a lawyer talk about present day Scottish legislation affecting children with disabilities at recent training events it struck me how little our modern Acts and legal system has improved. Inequality is sadly still very prevalent despite promising terminology. Furthermore our contemporary Scottish Acts have ‘no bottom ‘ in the sense that they are weak and are largely not enforceable by ordinary families. Dip into the Education (ASL) Act, the Equality Act or the Regulation of Care Act and see how far you get against the ‘ big fish.’ Terminology is often almost impossibly vague and when challenges are mounted local authorities and health boards have the legal resources to bankrupt most individuals who would put up a fight. No wonder they thumb their nose at ‘statutory’ obligations !
Pursuing ‘statutory ‘ entitlement is so often a highly complex, emotionally challenging and draining system for families living with disabilities. It brings ridicule to any notion of social justice and shame to us all.
Today a small victory occurred for a family I work with at IBA. It was not perhaps of huge significance in the grand scale of the inequality faced by people living with disability. It was however the culmination of a 7 month struggle. It was a determined effort to stand up for the rights of a child let down by a system that had shown a cumulative lack of understanding and compassion. That is all it takes to fail a young person and family who bravely face great challenges on a daily basis.
The conduct of those who had influence and power in these matters stands in stark contrast. Self interest and a refusal to stand up and speak up lest they risk their position and privileges characterised their failures.
A safety net that should be a cornerstone of a civilised society has been fought for and won. I’ll sleep a little bit better tonight knowing that.